AskthePatients @ DPHARM 2025
AskthePatients offers a unique opportunity for attendees to engage in small group discussions with patients or caregivers who have participated in clinical trials. Prior to the conference and on-site, you can schedule a 30-minute, small group meeting with one of the participating patient advocates. Patients will be available to meet on Tuesday, September 16th during the morning/afternoon breaks and lunch. Their expertise spans from managing or caregiving for someone with a chronic disease, rare condition, or cancer to experience in using mobile/digital technology in trials, and more.
All meetings will take place at the AskthePatients Center located in the foyer of the Exhibit Hall. To sign up in advance, please email Jolene Leutchen, Jolene@tcfllc.org OR register at DPHARM by visiting the AskthePatients table located next to Registration.
Introducing the Participating Patient Advocates
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Barry Nelson
I was diagnosed with advanced non small cell lung cancer in March 2012 and today, I continue to strive and live my best life!
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Karen Peterson
I am a Stage IV Triple Negative Breast Cancer Survivor advocating to empower patients of color with the knowledge and trust to pursue clinical trials that can save or extend their lives.
Victoria Gray
I was the 1st Sickle Cell Anemia patient in the world treated with CRISPR gene editing in 2019. Now symptom-free, I am a patient advocate and international speaker spreading the word about CRISPR and rare diseases to clinicians, scientists, patients, and students.
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Patrick Gee Sr, PhD, JLC
I am the Voice of the Voiceless and the Face of the Faceless in the fight against kidnsey disease.
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Yvonne Florence
I am a breast cancer survivor and advocate elevating the voice of the patients who are impacted by this health condition.
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Sabina Kineen
I am a Fabry Disease patient and caregiver, passionately advocating for clinical trial accessibility, health equity, and mental health awareness, open to sharing insights from 12 years of trial participation.
Vivian Cheng Larsen
As a patient engagement professional with 24+ years in healthcare and an Acute Myeloid Leukemia patient newly in remission for 1 year, I am committed to helping reshape the patient journey, increasing representation in clinical trials and ensuring that no one is left behind.
Rucha Shah
I’m a rare disorder lived-experience expert and clinical research project manager committed to driving initiatives that forge impactful disease community connections, improve patient outcomes, and amplify awareness.